Dave deBronkart Quotes

Dave deBronkart — American Writer

Richard Davies deBronkart Jr, widely known as e-Patient Dave, is a cancer patient and blogger who, in 2009, became a noted activist for healthcare transformation through participatory medicine and personal health data rights... (wikipedia)

I'm an e-patient: equipped, enabled, empowered, engaged. I'm no clinician, but I do everything in my power to help them, to play an active role in my own care, and even in the design of care.

Diagnosed incidentally with stage IV, grade 4 metastatic renal cell carcinoma, I had bone metastases in my femur (which eventually fractured), ulna, and cranium; five metastases in my lungs; and muscle metastases in my thigh and tongue. Yet six months after diagnosis, my treatment ended: I've not had a drop of anything since.

Where does my body end and an invader start? And cancer, a tumor, is something you grow out of your own tissue. How does that happen? Where does medical ability end and start?

I've been online since 1989; I was sysop on several CompuServe forums.

Careful writing is important for many reasons, not least that intelligent but hurried reporters will trust the presser, resulting in a cascade of secondary damage.

Dave deBronkart Quotes

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